STATS and FACTS For more infomation speak with your oncologist or go to www.cancer.org In 1921 a new form of bone cancer was found by James Ewing.  It became known as Ewing's Sarcoma , and was thought to only be in the bones.  It was soon detected in the soft tissue which is known as Extraosseous Ewing's.  In the same family (arising from the same primitive cells) is the Primitive Neuroectodermal Tumor (PNET), which is also found in the soft tissue and bones.  These all comprise the Ewing's Family of Tumors. Ewing's Sarcoma is the translocation (rearrangement of DNA) between chromosome 22 and chromosome 11.  When these cells divide the cancerous tumor is formed. 5% of bone tumors are Ewing's Sarcoma Around 150-200 people are diagnosed with Ewing's Sarcoma each year [in the US].   It is very rare. 64% of the people affected by Ewing's Sarcoma are between 10-20 years of age. 96% of the people affected by Ewing's Sarcoma are white, only 4% come from other racial backgrounds. Ewing's is descibed in two stages: Localized, involving only the site of origin, and Metastatic, involving spread to different areas of the body. Common tumor sites include pelvis, legs, arms and chest. If the tumor can be removed and chemotherapy and radiation therapy are used survival rates (5 years) can be as great as 80% If the tumor is large and can not be removed survival rates (5 years) is less than 60% When Ewing's Sarcoma is metestatic the 5 year survival rate is less than 30% Ewing's Sarcoma is 100% fatal without any form of treatment . There are no risk factors and no early prevention...as Heidi's doctor said, "Plain bad luck!"

Ewing's Sarcoma PNET Slide